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收录时间:2014-04-14

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PatientsLikeMe:在线患者病例数据共享平台

PatientsLikeMe:在线患者病例数据共享平台
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PatientsLikeMe:在线患者病例数据共享平台是一个致力于医疗保健病例分享的网站,通过分享、研究和病例数据分析,来为世界各地的患者提供相似病例搜索和相关治疗的服务网站,该网站服务宗旨是患者至上,提供最有效的方法来帮助患者恢复健康。

PatientsLikeMe:在线患者病例数据共享平台

PatientsLikeMe成立于2004年,由桑麻省理工学院的工程师联合创办,五年前他们的一个朋友被确诊为ALS卢伽雷氏症,于是他们开始寻找世界各地的病例参考,不幸的是并没有多少可参考的病例,于是他们就有了创办病例搜索平台的想法,通过团队的方式来建立一个健康数据共享平台,他们相信通过这样的数据平台可以改变患者的命运,让更多的患者通过相似的病例来寻找解决办法。

时至今日,PatientsLikeMe已经发展成为了以营利为目的的公司,遵循的核心价值是患者之上,提高透明度,存进开放式平台,在这里患者可以分享和实时学习,寻找类似病例数据,以改善患者的生活的挽救他人的生命。

PatientsLikeMe is committed to putting patients first. We do this by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, other patients like you and organizations that focus on your conditions.

PatientsLikeMe was co-founded in 2004 by three MIT engineers: brothers Benjamin and James Heywood and longtime friend Jeff Cole. Five years earlier, their brother and friend Stephen Heywood was diagnosed with ALS (Lou Gehrig’s disease) at the age of 29. The Heywood family soon began searching the world over for ideas that would extend and improve Stephen’s life. Inspired by Stephen’s experiences, the co-founders and team conceptualized and built a health data-sharing platform that we believe can transform the way patients manage their own conditions, change the way industry conducts research and improve patient care.

Today, PatientsLikeMe is a for-profit company, but not one with a “just for profit” mission. We follow four core values: putting patients first, promoting transparency (“no surprises”), fostering openness and creating “wow.” We’re guided by these values as we continually enhance our platform, where patients can share and learn from real-world, outcome-based health data. We’ve also centered our business around these values by aligning patient and industry interests through data-sharing partnerships. We work with trusted nonprofit, research and industry Partners who use this health data to improve products, services and care for patients. (Read How We Make Money and our Privacy Policy for more.)

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